Personal stories about Parkinson's disease–related hallucinations
Hear from people with PD-related hallucinations and delusions and their caregivers
The experiences of these families may not be the same as yours, but their stories may give you a better understanding of hallucinations and delusions related to Parkinson's disease (PD). Always speak with a healthcare provider about your own experience.
"The hallucinations weren’t every day, so I thought maybe it’s a temporary phase. When I realized it wasn’t, we called the doctor."*
*Based on experiences shared by a caregiver of a loved one living with hallucinations and delusions associated with Parkinson’s disease psychosis.
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Living with Parkinson’s disease–related hallucinations and delusions
Jay & Diane
Diane’s husband, Jay, experiences hallucinations and delusions related to Parkinson’s disease (PD). In this video, Diane talks about the challenges of caregiving and how learning about other people's experiences with PD has helped her feel less alone.
Learn more about the impact of PD-related hallucinations and delusions.
Joe & Mariann
In this video, Joe and his friend Mariann, discuss his experience living with PD-related hallucinations and delusions. Joe talks about how the hallucinations have affected him, and how he started to speak to his healthcare provider to address them.
See more about how people with PD describe their hallucinations and delusions.
Talking to your healthcare provider
Michael & Renee
Seven years after being diagnosed with PD, Michael began to experience related hallucinations and delusions. In this video, his wife, Renee, shares their experiences and explains why reporting to your healthcare provider is so important.
Use the doctor discussion guide to have a meaningful conversation with your healthcare provider.
Jody & Ruth
Jody’s mother, Ruth, started experiencing hallucinations and delusions after her PD diagnosis. In this video, Jody talks about how she found relief in talking to the doctor about these symptoms, as well as reassurance that hallucinations and delusions are part of the disease.
If you or your loved one is experiencing PD-related hallucinations and delusions, learn about a treatment option that may help.
The impact of Parkinson's disease–related hallucinations and delusions
Ruth & Zoey
Zoey helps care for her grandmother, Ruth, who is living with PD-related hallucinations and delusions. Zoey speaks about her experience—including how diﬃcult it was for the family to understand what was happening when the hallucinations started. She also shares how caring for a relative with these symptoms can affect the whole family.
Watch more personal stories from people living with PD-related hallucinations and delusions, and their caregivers.
Talk about new or worsening symptoms
with your doctor
Get more information about PD-related hallucinations and delusions
IMPORTANT SAFETY INFORMATION and INDICATION
What is the most important information I should know about NUPLAZID?
Medicines like NUPLAZID can raise the risk of death in elderly people who have lost touch with reality (psychosis) due to confusion and memory loss (dementia).
NUPLAZID is not approved for the treatment of patients with dementia-related psychosis unrelated to the hallucinations and delusions associated with Parkinson’s disease psychosis.
Who should not take NUPLAZID?
- Do not take NUPLAZID if you have had an allergic reaction to any of the ingredients in NUPLAZID. Allergic reactions have included rash, hives, swelling of the tongue, mouth, lips, or face, throat tightness, and shortness of breath.
- Do not take NUPLAZID if you have certain heart conditions that change your heart rhythm. It is important to talk to your healthcare provider about this possible side effect. Call your healthcare provider if you feel a change in your heartbeat.
What other warnings should I know about NUPLAZID?
- QT Interval Prolongation: NUPLAZID may increase the risk of changes to your heart rhythm. This risk may increase if NUPLAZID is taken with certain other medications known to prolong the QT interval. Tell your healthcare provider about all the medicines you take or have recently taken.
Please also see What is the most important information I should know about NUPLAZID?
What medicine might interact with NUPLAZID?
- Tell your healthcare provider about all the medicines you take. Other medicines may affect how NUPLAZID works. Some medicines should not be taken with NUPLAZID. Your healthcare provider can tell you if it is safe to take NUPLAZID with your other medicines. Do not start or stop any medicines while taking NUPLAZID without talking to your healthcare provider first.
What are the most common side effects of NUPLAZID?
- The common side effects of NUPLAZID include swelling in the legs or arms, nausea, confusion, hallucination, constipation, and changes to normal walking. These are not all the possible side effects of NUPLAZID. For more information, ask your healthcare provider about this medicine.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1‑800‑FDA‑1088. You can also call Acadia Pharmaceuticals Inc. at 1‑844‑4ACADIA (1‑844‑422‑2342).
NUPLAZID is a prescription medicine used to treat hallucinations and delusions associated with Parkinson’s disease psychosis.
How should I take NUPLAZID?
The recommended dose of NUPLAZID is one 34 mg capsule once per day, taken by mouth.
NUPLAZID is available as 34 mg capsules and 10 mg tablets.
Please read the full Prescribing Information, including Boxed WARNING.