Personal stories

Watch personal stories about people and caregivers living with Parkinson's disease-related hallucinations and delusions. Even though their experiences may not be the same as yours, their stories may give you a better understanding of these symptoms.

Ruth & Zoey

Zoey helps care for her grandmother, Ruth, who is living with hallucinations and delusions. Zoey speaks about her experiences—and how caring for a relative with these symptoms can affect the whole family.

“When the hallucinations began, it felt so real to her that they didn’t even seem like hallucinations. We didn’t know what it was.”

Zoey W.



Michael & Renee

Renee’s husband, Michael, began to experience hallucinations and delusions 7 years after being diagnosed with Parkinson’s. In this video, she shares their experiences and explains why reporting symptoms to your healthcare provider is so important.

“We want people to understand that this is part of Parkinson’s, and there’s something you can do about it.”

Renee C.

Ruth & Jody

Jody’s mother, Ruth, started experiencing hallucinations and delusions after her Parkinson’s diagnosis. In this video, Jody talks about the importance of communicating openly with your healthcare provider.

“I felt some relief in talking to her doctor and him reassuring that it was part of the disease.”

Jody W.

Do these stories sound like your own?

Please speak to your healthcare provider about the hallucinations and/or delusions that you or your loved one are experiencing.